Ibland brister omdömet...
don't f* with asperger :D -Roelant :)
Matt *->Josh *
How many fucking accounts are you gonna have? You add me every time because you think I like you
Bryan * Excuse me, please do not be so rude. It is Joshes Facebook, and he is allowed to do whatever the hell he wants. If you don't like him why bother commenting - just to show off. Now, leave him alone, and don't accept his request if you dislike him. Do I make myself clear?
Roelant * I second Bryan's opinion, now don't be such a rude imbecile. Josh is a great guy, and if you have a problem with him, you have a problem with me and Bry, ps you look like the kind of guy i would have loved to put in a garbage can in high school
Bryan * I know right, Roe, I'd be one of the cheerleaders in the background chanting 'Go Roe; Go Roe; Go Roe' then I'd make sure the garbage disposal squad is called in to dispose of those not needed and irrelevant to the smart non-bullying human
Bryan * Just checked out his profile ^^ and he's older than ME. I'm 21 and he's a year OLDER. Saying that to a 15 year old boy with Autism. You should be ASHAMED of yourself. I hope I never meet you
Roelant * well lets find a container then in stead of a garbage can, shall we?
Bryan * Something big enough to hold a grown human male. How about........ an alligator?
Roelant * well bryan about that, to fit such requirements a crocodile would be better. but if the objective is to hold him entirely. then only a sperm whale is able to swallow him. perfect match for a dickhead i'd say
Bryan * LOL - I think he should have got the message by now - let's leave it alone for now.
Jag kunde inte låta bli att dela med mig utav mina tankar kring att de lade upp detta i en status...
Jag: Bryan, as much as I love what you have done/are doing for the many people with Aspergers out there, this page shouldn't be either about raising yourself up to some grand hero stature through posting private fights openly for every member to see. The only thing that does is making you look hungry for personal gratification. Standing up for that teenager is a good thing, but my advice to you is to keep drama to a bare minimum on the page unless you want to risk that many followers unlikes it (I'm currently not one of them, but I understand why people get upset).
You do have every right to feel and say whatever you like on your very own page, but if you can't understand why Shakespearian-dramas like this is offputting to people, then I believe you need to ask yourself who you really are running this page for. Is it the aspergers community or yourself?
By creating this page you are already a hero in my book, but now that it has so many members, you need to focus more on just maintenance, and allow it to grow by itself. I do believe that the page has already reached a critical mass, allowing it to keep growing even if you didn't play such an active role.
I think the page would grow more if you actually took the role as the guy that runs it all behind the curtains.
Please understand that I am grateful for everything you do for the Asperger community Bryan, and that this criticism only are suggestions.
Gilla · 22
Jag: I'm not saying that you should stop posting stuff Bryan - or that wasn't what I ment with "the guy that runs it all behind the curtains", so I'll elaborate:
What I did mean was: keep posting educating, informing stuff, but allow the page to be less about yourself and more about aspergers in general. I do find you an interesting person though, and I do like to hear your personal opinions about aspie-related things in discussions. I just don't think that this page should be Bryan's personal ego boost-page.
Gilla · 9
Jess: you articulated what I also feel about this, I think the admin team are great but all this could make them lose credibility and that would be a shame.
Sluta gilla · 2
Sarah: Well it's his page and he can make it what he wants it to be and it's especially irrelevant what you think this page "should" be. If you want a page that's more about aspergers in general then go make one yourself.
Gilla · 1
Jag: It certainly is not IRRELEVANT what I think Sarah. I am a member just like you and I am entitled to my opinion. And clearly I am not the only one with these thoughts. As an aspie I know how hard it can be to see things nuanced instead of black and white, but really, if there is one thing that will help us aspies being more accepted in society, that is to learn how to see things in the gray shades, or different colors even.
As much as I am frustrated by NT's that refuses to see things through my perspective, I still have a responsibility towards myself and others to try my very best to see things through ALL ANGLES and not just my very own.
Gilla · 5
Jag: And to adress the thing you said about making my own page - I rather not, as I see just how much energy it can take from a person, time and life quality. I have too many special interests to make such a page work. This is why I admire what Bryan does so much! But that still won't turn me into someone who abandons my own ability to think critical.
I do share Bryans will to spread information about Aspergers though, and I do have my own blog that does that very thing. If Bryan and fellow admins are unwilling and unable to see things through others perspectives, then I do believe that this page will falter in time. And that is something I don't want. I want this page to expand and grow more than anything. So please, I am not an enemy here, I am an ally!
Gilla · 6
Annie: Byran stated recently that "likes" are critical to spreading awareness about Asperger's. Well by that stance, Claes's post is critical. The admins need to know what people "like" because not everyone has been here as long and will be willing to stay. I do agree that the page needs to have less personal drama aired. The information on the page is so valuable. I don't have the condition myself but I am not, in my own humble opinion, neurotypical. I have dyslexia and add and have two kids with sensory issues, one of which is dx ASD. I'm busy. VERY Busy raising three kids that are less than 31 months apart in age, going to school myself, and being a military wife... and the thing is, my life isn't unusual. Most people are genuinely busy, especially those advocating for special needs support. There's very little room for people to "see" all that is on the page at a quick and often unavoidably rushed glance. Bryan may certainly do what ever he likes with the page. But if "likes" are a concern, these are points to remember. Perhaps even creating a group where such private matters could be discussed by more involved ASA Page followers would be a good alternative.
Sluta gilla · 4
...To be continued?
/Cassow
Aspergers syndrom och schizofreni? :/
Anonymous Question Posted by Joanne
"Is there anyone with aspergers who has experienced intrusive voices in their head? My teenage son is troubled by this at the moment and I would like to find out whether anyone else with aspergers or HFA has experienced this. Thank you."
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Man måste ju som orolig förälder få fråga, men jävlar vad arg jag blir när det dyker upp svar som detta nedan, som sprider ut en massa missinformation om vad som är Aspergers. Förvisso tror ju Charlene på fullaste allvar på det hon skriver, så det är egentligen inte hennes fel att det blir så här fel, men det riskerar ju att ge Aspergers syndrom, som redan är en väldigt missförstådd diagnos med ett oförtjänt dåligt rykte, ett ännu sämre rykte.
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Charlene: I'm 21 and i have aspergers as well, and i hear voices. If i dont keep my mind active i hear them more. they tell me to do bad things, harm myself and others, but when they get really bad they tell me ways to kill people. i know this sounds bad, but i found a way to control it. I am a writer, i write horror stories so i channel what the voices say into my writing and it helps a lot.
my doctors know of this and i am not schizophrenic, its just apart of the aspergers. the best way to deal with this is to keep your mind active, by that i mean do what you enjoy. (i love reading, doctor who, and writing, so i spend my days doing just that, i read a lot, and i write all day and i watch doctor who 24-7)
when the voices get bad you just have to deal with it but dont do anything they say. its like a shadow we have that we have to deal with, sometimes we can see our shadow and other times we cant, but its there. there are meds to help, i dont take any though, i tried but none worked.
the best advice anyone can give you is to keep your mind active, if you like video games, play them, if you like sports, play them, join a team. whatever makes you happy and your mind busy. even thinking can help. just make sure they never get too bad. it is my personal belief that as an aspie, we are all high functioning sociopaths, but not all of us are. dont get me wrong here, for us aspies who deal with voices, we are high functioning sociopaths, theres nothing bad about it. it just means our brain is hardwired differently even from other aspies.
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Jessy: I'm guessing it probably matters what the voices are saying ... whether he's hearing them as his own voice - or as another person / persona, how he responds to them, what he believes about them etc ect... if these voices are changing his behaviour etc etc... I have Aspergers and I have my OWN (usually) negative thoughts in my head, which I can't really control ... when I had a 'breakdown' I used to say it was like instead of 'normally' having one 'line' to the 'devil' and another 'line' to 'God' it was like I had ONLY a permanent 'hotline' to the 'Devil' ... but I wasn't being entirely 'literal' ... I knew the voices were my own - it's just that the balance of positive vs negative thoughts was WAY outa whack ... and anyway, I was hospitalised during this time in a Psych ward - and they decided ALL I had was Anxiety/Depression issues - nothing 'sinister' ... BUT best get checked by a GOOD Psych who is ALSO knowlegable in ASD
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Tobias: that MIGHT be schizophrenia if he is hearing voices which aren't there there is no reason why he couldn't have both sorry if i scared you but if thats the case i would have him checked about that as its common for schizophrenia to develop during adolescence
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Marie: that has nothing to do with aspergers I'm going to be blunt I'm not trying to hurt feelings but this pisses me off! hearing voices that tell you to do things ARE NOT ASPERGERS I'm tired of people saying certain things are bc of aspergers when they aren't!!!! aspergers doesn't mean they are crazy doesn't mean they turn out violent doesn't mean they will kill someone!! having an imaginary friend is ok and normal and different that what the op is talking about, having songs stuck in your head is normal has nothing to do with any diagnosis!! people with aspergers are not violent they do not grow up to be!!!! people can have aspergers and also other diagnoses that have those traits!!!!
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Jag: I am an aspie myself and I know that all aspies are unique and different from eachother, while sharing certain traits, but I still refuse to acknowledge that "hearing voices inside your head" is part of Asd as it clearly has nothing to do with autism spectrum disorder. I base this on the fact that i have read 4 or 5 books about Asd (among them Tony Attwoods brilliant "The complete guide to Aspergers syndrome") and that I have never encountered this on any list of aspie-traits, nor any chapters about "hearing voices".
What I have no problem with acknowledging though, is that Schizophrenia can be a side diagnosis beside Asd, because that much is proved.
I find it very upsetting that there are unprofessional doctors out there who claims that hearing voices in the head is not Schizophrenia but instead Asd, and that they even have managed to brainwash parents and aspies alike into believing it!
...
Jag (igen)@Stacy: Possibly, but Asd and Schizophrenia must not be mixed together and fused into one diagnose. I think that would be very wrong, unfortunate and hurtful for the Aspie-community as a whole if Asd was also associated with "hearing voices inside your head". We have plenty enough traits as there is.
Aspies can have obsessive thoughts, but that is not the same thing as Schizophrenia. Hearing your own voice inside your head is not Schizophrenia. Hearing other voices inside your head on the other hand, I'd say would qualify.
Jag (igen!): Ok, so I opened up Tony Attwood's book "The complete guide to Asperger's syndrome" and searched for anything relating to schizophrenia in the register in the back, and found a little here and there. To summarize it, I'll translate my swedish edition into english as well as I can.
"We have yet to determine the actual correlation between Asperger Syndrome and Schizophrenia, but currently there is no evidence in psychiatric science litterature, that schizophrenia is more commen with people that has Asperger's syndrome than within the general population."
Also I read in the book that many doctors and psychiatrists in the world confuse Aspergians often vivid imagination and ability to create their own inner fantasy worlds and such, with schizophrenia. So clearly this is a widespead problem when it comes to diagnosis.
Attwood's explaination to why some people are wrongly diagnosed with Schizophrenia instead of Asd, is that the doctors tend to ask the questions the wrong way in interviews, since many aspies take things litterary. One example:
- Do you hear voices?
- Yes.
The aspie may translate the question as if the interviewer wonders if he/she can hear voices in general, not specifically inside his/her own head. To answer "Yes" to that question may also refer to each and everyones own inner personal voice. That shouldn't be confused with, nor be compared with, hearing other people's voices, or unknown voices in your head telling you what to do. The problem is that some aspie teens doesn't realize that they do have an own inner personal voice, which makes them wrongly believe that they in fact are schizophrenical.
Fan att man ska behöva informera om sånt här. Men det är bara att fortsätta tills det går in hos folk...
Schizofreni är sin egna diagnos och har _ingen_ korrelation med Aspergers! Eventuella tvångstankar som aspergare kan lida utav är inte schizofreni heller. Däremot så är det fullt möjligt för en person som har Asd att även ha Schizofreni, men Schizofrenin har alltså inte större förekomst hos folk inom autismspektrumet än det har hos övriga befolkningen.
/Cassow
Salmon Schulman är en bakåtsträvande idiot.
Salmon Schulman skriver idag i en artikel i Expressen om hur Bokstavstrenden är farlig för barn.
För det första så finns det inte en bestämd kvot för hur många det får finnas med en given neuropsykiatrisk diagnos ute i samhället.
Att neuropsykiatrin vinner allt mer mark i dagens samhälle, tror jag inte beror i första hand på att läkemedelsindustrin lobbar för att sälja mer mediciner. Givetvis vill de tjäna så mycket pengar de bara kan, och givetvis ska detta beaktas som faktor. Men i första hand så är jag övertygad om att neuropsykiatrin gör sina landvinningar eftersom man gjort stora framsteg inom forskningen utav olika diagnoser de senaste 10+ åren.
(Nej jag har ingen direkt källa att vila mitt påstående på, ni får lov att tro vad ni själva vill efter att ha läst Schulmans artikel och mina egna argument i detta blogginlägg).
Utöver detta så tror jag att dagens samhälle mer har gått i från det gamla kollektivistiska tänket (vilket har både för-och nackdelar) till att se till enskilda individer, och dessas enskilda behov.
Risken för stigmatisering utav människor har alltid funnit, oavsett om de som "sticker ut" levt i ett kollektivistiskt samhälle där de frysts ut, mobbats, avfärdats eller ignorerats - eller om de fått en diagnos i nutidens individualistiska samhälle. Att allt fler individer som sticker ut, erkänns och får ta plats i samhället ser jag som enbart nyttigt och produktivt. För det är endast genom detta synliggörande som man på sikt kan ersätta massans fördomsfulla kollektiva okunskap om diagnoser, och få dem att fatta att dessa människor faktiskt inte bara utgör en ekonomisk belastning i samhället, utan att de faktiskt också väldigt ofta besitter begåvning och förmågor som är likvärdiga, eller specialförmågor som 'vanliga' människor saknar.
Att allt fler barn diagnosticeras handlar inte om att föräldrar ska undslippa all form av ansvar för sina barn. Arv och miljö är båda lika viktiga faktorer att beakta vid varje enskilt fall.
Det handlar heller inte om att alla som blir diagnosticerade ska pumpas fulla med mediciner. Jag tycker själv att man inom neuropsykiatrin bör vara restriktiv med medicinering, och istället mer fokusera på kognitiv beteendeterapi. Huruvida ett barn med en diagnos ska medicineras eller inte, är ett ansvar som till största delen vilar hos läkarna med sin expertis, och i andra hand hos föräldrarna.
I den bästa av världar så vet föräldrarna vad som är bäst för sina egna barn. Motsatt kan man säga att i den bästa av världar så vet läkarna när och om medicinering är det bästa alternativet. Det finns inget svart eller vitt här, utan man får lov att vara pragmatisk. Men Salmon Schulman tyckas vilja kvotera diagnoser utifrån någon matematisk formell om hur stor del av befolkningen som får ha en given diagnos, är verkligen, i mitt tycke att sträva mot att sopa funktionshindrade som minoritetsgrupp, med sina individuella behov, under mattan. Den sortens bakåtsträvande ser jag enbart som skadlig för samhället.
För övrigt kan jag upplysa Salmon Schulman om att ADHD och andra bokstavsdiagnoser inte är en "SJUKDOM" utan ett tillstånd, som räknas som ett funktionshinder i samhället enbart därför att en minoritets hjärnor fungerar annorlunda än majoritetens. Frågan man får ställa sig är hur stor en minoritetsgrupp får bli innan den upphör att vara minoritet, och istället faller inom det "normativa". Men det är ju det som Salmon Schulman vill kontrollera - samla alla inom det normala, och skylla alla barnens svårigheter att passa in i det normativa, på föräldrarnas uppfostran av barnen.
/Cassow